Rhys: Fight for Life - The Daniels Family Story

by Terry Manners (Author), Barry Daniels (Author)

• Used

  Paperback
  1995

  $3.47

  From fairy tale romance to heartbreak and a struggle against seemingly overwhelming odds, this book is the true story of the Daniels family's tragedy and triumph. After four years of happy marriage and two beautiful children, tragedy struck Barry and Carmen Daniels. Daughter Charly was misdiagnosed as an epileptic, and the drugs she was prescribed nearly killed her. Then her illness was identified as Batten's Disease, a disorder so rare that few doctors could recognize it. The odds were one in a million that their 15-month-old son Rhys could also have Batten's Disease - but he did. The Daniels family had not only love and hope but also Barry and Carmen's determination to give their children a full and rewarding life. As little Rhys fought on, Charly's condition deteriorated. After one bone marrow transplant proved unsuccessful for Rhys, a major US and British media search found another suitable donor. This time the transplant worked and Rhys is on the road to recovery. Barry and Carmen are now working for the charity they launced to help other families facing the same crisis.